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From the President:
Pat Leece |
The Lupus Foundation of Ontario is a
voluntary organization dedicated to improving the lives of people
living with lupus through advocacy, education, public awareness,
support and research.
Lupus Foundation of Ontario has been able to
bring great public awareness to a little known disease through a
network of unpaid volunteers. We are grateful for their work and
commitment on our behalf. |
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| Fund Development |
 | Bequests, donations (personal and corporate)
and memorials |
| Millie Bonspiel (Milton) |
| Irish Canadian Connection Golf Classic
(London) |
| M & M barbecues |
| Walk a Block (Welland, Trenton, Elliot Lake,
Kirkland Lake, and Ajax) |
| Ridgeway Festival (Ridgeway) |
| Dress Down Days (Fort Erie, Toronto) |
| Yard Sale by Toronto School in our honour |
| Sale of books and promotional items |
| Katrina held a Rock Band concert in London
(Proceeds to LFO) |
| Tammy's Clothing Sale |
| Joanne held a month-long event at a local
mall in Kirkland Lake, distributing literature and accepting
donations |
| Town of Fort Erie Golf Tournament |
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Extending our Reach:
Communications and increased public awareness |
| Distributed 29,200 copies of Introduction to
Lupus; 2.800 copies of our newsletter; and 5,000 bookmarks
throughout Ontario utilizing a network of community volunteers |
| Distributed information packages quarterly to
Lupus Clinics in Ontario |
| Received a total of 3,629, 889 website hits |
| Distributed 5,078 pieces of mail |
| Conducted flag-raising ceremonies in
communities throughout Ontario during the year with media
contacts and literature distribution to city officials and
local libraries, drug stores and hospitals |
| Proclamations read in various communities
throughout Ontario ~ many telecast by local Cable TV, placed
on the official website, posters in various departments and
the lobbies |
| Placed advertisements in community
publications (circulation 1million +) |
| Participated in 7 health/volunteer fairs and
community events |
| Arranged for 9 newspaper articles and 3 radio
interviews |
| Delivered letter appeal and information
packages (re: petition) to 137 MPPs in Ontario |
| Presented petition (introduced by MPP Kim
Craitor) to Government of Ontario to request greater funding
for educational and research activities |
| Made public presentations about lupus |
| Became a partner in Healthy Living, Niagara
Public Health Department and Leave a Legacy |
| Facilitated presentations at 7 public
schools, 5 high schools, and 5 colleges presented by Nursing
students |
| Attended Niagara Falls Liberal Caucus
meeting, meeting the various MPPs and Ministers |
| Caroline, Elliot Lake arranged a flag
raising, public awareness events and fund raising events |
| Sent information packages to Ontario
Nephrologists |
| Delivered boxes of literature to new doctors
in the area |
| Proclamation read at Queen's Park |
| Health Fairs at Dofasco, Hamilton and General
Dynamics, London |
| Literature to Red Cross (Enrichment Living) |
| Literature to Conestoga College |
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| Consistent Delivery of
HIGH QUALITY SERVICES |
| Maintained contacts with and gathered
information from National Institutes of Health, United States
Health Services institutes, Lupus Foundation of America, Lupus
Alliance of America, Lupus Research Institute and Cure4Lupus |
| Maintained 800 line for inquiries |
| Maintained office presence 4 days per week
providing information and telephone support to members and the
public |
| Responded to 41 walk-ins for information |
| Held information sessions/support group
meetings in 6 locations |
| Distributed 224 information packages in
response to inquiries |
| Responded to 6,785 e-mails re: information,
support, and networking |
| Produced and distributed 2,800 copies of
quarterly Lupus Talk newsletter |
| Expanded education library of books and pamphlets |
| Launched KIDZ Educational Study to determine
existing literature for pediatric lupus patients; designed
Phase II of the project and issued Request for Proposals |
| Shared information on issues potentially
affecting people with lupus: electomagnetic fields,
fluorescent lighting, tanning beds, DECT phones |
| Sent out H1N1 position of the Lupus Clinic
located in the Toronto Western Hospital |
| Supplied information booklets to Hospital
Libraries |
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| Strengthening our
VOLUNTEER FOUNDATIONS |
| Worked with volunteers to literature
distribution, fundraising, public awareness and Board |
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| RESEARCH |
| Distributed CaNIOS study request for lupus
participants |
| Donated $10,500 funding to CaNIOS |
| Donated $5,500 to SLICC |
| Established a yearly Research Scholarship for
a student |
| KIDZ Project ~ Phase |
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